SOLICITATION NOTICE
B -- Creutzfeldt-Jakob Disease (CJD) Support Services
- Notice Date
- 5/6/2004
- Notice Type
- Solicitation Notice
- NAICS
- 624190
— Other Individual and Family Services
- Contracting Office
- Department of Health and Human Services, Center for Disease Control and Prevention, Acquisition and Assistance Field Branch (Morgantown), 1095 Willowdale Road, Morgantown, WV, 26505
- ZIP Code
- 26505
- Solicitation Number
- 0000HCRU-2004-08490(1)
- Response Due
- 5/21/2004
- Point of Contact
- Kimberly Groves, Purchasing Agent, Phone 304-285-5885, Fax 304-285-6083, - Brenda Goodwin, Contract Specialist, Phone (304)285-5882, Fax (304)285-6083,
- E-Mail Address
-
kpg0@cdc.gov, bcg1@cdc.gov
- Description
- The posting amends an earlier synopsis entitled “Creutzfeldt-Jakob Disease (CJD) Support Services” which was posted on April 20, 2004, as a potential sole source action to the Creutzfeldt-Jakob Disease Foundation, Akron, OH. Information contained in the amendment is being provided to better describe the specific tasks associated with this project in an effort to assist alternative sources in determining whether they possess the qualifications to perform the work. BACKGROUND: Creutzfeldt-Jakob disease (CJD) is an incurable brain disorder that occurs with an incidence of 1 case per million annually. The majority of patients die within 6 months of illness onset. The disease causes damage to the brain leaving patients completely dependent on their caregivers for the most basic needs of daily living. The services provided through this project will greatly assist in achieving CDC’s goal of increasing the number of autopsies of suspected CJD cases, increasing public awareness about CJD, and providing support to CJD families. To date, the CJD Foundation has implemented several initiatives to provide support to CJD patients and their families. Maintaining a toll-free helpline to provide support to these family members from others who have gone through the same experience is extremely helpful. Creating a forum in which family members can receive assistance and discuss issues related to home and post-mortem care is crucial. The CJD Foundation Family Conference creates an additional forum that facilitates dialogue between researchers working on CJD and the family members. These discussions help researchers to gain more knowledge about the social impacts of the disease and exchange ideas on potential areas of research. Learning more about prion diseases through autopsy study of CJD cases would assist in the surveillance of potentially emerging forms of the disease and would facilitate the development of a pre-mortem diagnostic test or treatment for CJD. The CJD Foundation could play a key role in helping to increase the number of autopsies of CJD cases by educating family members and health care providers about the need for autopsy. This can be achieved through the production and distribution of informational booklets on “Guide for autopsy of suspected CJD cases.” PURPOSE: This acquisition is to continue maintenance of a toll-free helpline that provides guidance and information to families of CJD patients and creating a forum in which families can exchange information. The service provided by the CJD Foundation should encourage family members of CJD patients to discuss the need for autopsy with the attending physician and increase family member’s awareness about the critical need for autopsy. Continued sponsorship of the CJD Foundation Family Conference will raise public awareness about CJD and provide prion disease researchers with an opportunity to share their work SPECIFIC TASKS TO BE PERFORMED: A) Maintain a toll-free helpline to provide: 1) Information to family members of CJD patients about the disease to help them prepare for the eventual fatal outcome of the disease; 2) A forum in which family members of CJD patients can network to share information with each other; and 3) guidance on various types of services (e.g., hospice, funeral home) that would be helpful to family members of CJD patients. B) Educate family members of CJD patients, produce a booklet on “Guide for autopsy of suspected CJD cases,” highlighting current barriers to autopsies and indicating why autopsies are needed and the need for family members to provide consent for autopsies. Such an information booklet could also highlight the fact that surveillance for emerging forms of CJD and progress in CJD research, particularly the development of a pre-mortem CJD test or treatment, heavily rely on learning more about the disease through autopsy studies of CJD cases. C) Educate health care workers and the public about CJD via a website, teleconferences, meetings, and development of educational materials to: 1) Increase awareness about the disease; 2) Describe the need to conduct autopsy of suspected CJD cases to facilitate surveillance of the disease; and 3) Increase awareness about the state-of-the art free CJD diagnostic services provided by the National Prion Disease Pathology Surveillance Center. D) Sponsor a national conference that would bring together family members and professionals working on prion diseases. Through this announcement, alternate sources are being offered the opportunity to demonstrate their capabilities to provide the services specifically identified above. To be considered qualified, sources must submit a capabilities statement which demonstrates in writing that they possess at least 2 years of experience in delivering the kind of activities outlined in the SOW including: facilitate interaction and provide support services to family members of CJD patients, educate family members to increase the low autopsy rate among CJD patients (an impediment to CDC's CJD surveillance activities), and bring together family members of CJD patients and CJD researchers to facilitate interactions on significant issues affecting family members that would advance applied CJD research and national surveillance programs. Responses must contain no more than 10 pages total. Qualified organizations are encouraged to submit a capabilities statement which addresses the requirements and contains material in sufficient detail to allow the CDC to determine if the party can perform this requirement. Capabilities are to be received in the contracting office no later than fifteen (15) days from the date of this amended announcement. Submit written information to: Kimberly Groves, MS-1019, Reference: 0000HCRU-2004-08490, DHHS/PHS/CDC, 1095 Willowdale Road, Morgantown, WV 26505, or responses may be submitted electronically to Kimberly Groves at kpg0@cdc.gov. The intent of this synopsis is to determine whether alternative sources exist. Information received will be used solely for the purpose of determining whether to conduct a competitive procurement. A determination by the Government not to compete this proposed requirement based upon responses to this notice is solely within the discretion of the Government. All responsible sources may submit a response, which shall be considered by the Agency. NOTE: THIS NOTICE MAY HAVE POSTED ON WWW.FEDBIZOPPS.GOV ON THE DATE INDICATED IN THE NOTICE ITSELF (06-MAY-2004). IT ACTUALLY APPEARED OR REAPPEARED ON THE FEDBIZOPPS SYSTEM ON 15-JUN-2004, BUT REAPPEARED IN THE FTP FEED FOR THIS POSTING DATE. PLEASE CONTACT fbo.support@gsa.gov REGARDING THIS ISSUE.
- Web Link
-
Link to FedBizOpps document.
(http://www.eps.gov/spg/HHS/CDCP/MNIOSH/0000HCRU-2004-08490(1)/listing.html)
- Record
- SN00604071-F 20040617/040615213149 (fbodaily.com)
- Source
-
FedBizOpps.gov Link to This Notice
(may not be valid after Archive Date)
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