SOLICITATION NOTICE
B -- CREUTZFELDT-JAKOB DISEASE (CJD) SUPPORT SERVICES (AMENDMENT)
- Notice Date
- 6/15/2004
- Notice Type
- Solicitation Notice
- NAICS
- 624190
— Other Individual and Family Services
- Contracting Office
- Department of Health and Human Services, Center for Disease Control and Prevention, Acquisition and Assistance Field Branch (Morgantown), 1095 Willowdale Road, Morgantown, WV, 26505
- ZIP Code
- 26505
- Solicitation Number
- 0000HCRU-2004-08490(2)
- Response Due
- 6/30/2004
- Archive Date
- 7/15/2004
- Point of Contact
- Kimberly Groves, Purchasing Agent, Phone 304-285-5885, Fax 304-285-6083, - Brenda Goodwin, Contract Specialist, Phone (304)285-5882, Fax (304)285-6083,
- E-Mail Address
-
kpg0@cdc.gov, bcg1@cdc.gov
- Description
- This posting further amends an earlier synopsis entitled ?Creutzfeldt-Jakob Disease (CJD) Support Services? which was initially posted on April 20, 2004, and amended by a posting on May 6, 2004. Information contained in the amendment is being provided to better define requirements for submission of capabilities from alternative sources. BACKGROUND: Creutzfeldt-Jakob disease (CJD) is an incurable brain disorder that occurs with an incidence of 1 case per million annually. The majority of patients die within 6 months of illness onset. The disease causes damage to the brain leaving patients completely dependent on their caregivers for the most basic needs of daily living. The services provided through this project will greatly assist in achieving CDC?s goal of increasing the number of autopsies of suspected CJD cases, increasing public awareness about CJD, and providing support to CJD families. To date, the CJD Foundation has implemented several initiatives to provide support to CJD patients and their families. These initiatives include maintaining a toll-free helpline to provide support to these family members who have gone through the same experience, creating a forum in which family members can receive assistance and discuss issues relating to home and post-mortem care, and facilitate dialogue between researchers working on CJD and the family members. These discussions help researchers to gain more knowledge about the social impacts of the disease and exchange ideas on potential areas of research. CDC is convinced that the more CDC can provide help to diagnosing neurologists and to the relatives of patients and the more relatives know about prion diseases, the more likely such relatives will want, or at least not object to, obtaining a brain autopsy on the CJD patient. Learning more about prion diseases through autopsy study of CJD cases would assist in the surveillance of potentially emerging forms of the disease and would facilitate the development of a pre-mortem diagnostic test or treatment for CJD. An important objective of this acquisition is to increase the number of autopsies of CJD cases by educating family members and health care providers about the need for autopsy. PURPOSE: This acquisition is intended to enhance surveillance of human prion disease by maintaining a toll-free helpline that provides guidance and information to families of CJD patients and creating a forum in which families can exchange information. The service provided by this acquisition should encourage family members of CJD patients to discuss the need for autopsy with the attending physician and increase family member?s awareness about the critical need for autopsy. Autopsy information provides CDC a means to identify new and emerging dieases early. Continued sponsorship of a national conference in which family members can discuss issues and facilitate dialogue with CJD researchers will raise public awareness about CJD and provide prion disease researchers with an opportunity to share their work and target new research activities. SPECIFIC TASKS TO BE PERFORMED: A) Maintain a toll-free helpline 24 hours/7 days a week, manned between the hours of 8:00 am to 5:00 pm with voice mail and remote access on evenings and weekends. The helpline would provide: 1) Information to family members of CJD patients about the disease to help them prepare for the eventual fatal outcome of the disease; 2) A forum in which family members of CJD patients can network to share information with each other; and 3) guidance on various types of services (e.g., hospice, funeral home) that would be helpful to family members of CJD patients B) Educate family members of CJD patients by producing a booklet ?Guide for autopsy of suspected CJD cases,? highlighting current barriers to autopsies and indicating why autopsies are needed and the need for family members to provide consent for autopsies. Such an information booklet could also highlight the fact that surveillance for emerging forms of CJD and progress in CJD research, particularly the development of a pre-mortem CJD test or treatment, heavily rely on learning more about the disease through autopsy studies of CJD cases. C) Educate health care workers and the public about CJD via a website, teleconferences, meetings, and development of educational materials to: 1) Increase awareness about the disease; 2) Describe the need to conduct autopsy of suspected CJD cases to facilitate surveillance of the disease; and 3) Increase awareness about the state-of-the art free CJD diagnostic services provided by the National Prion Disease Pathology Surveillance Center. D) Sponsor a national conference that would bring together family members and professionals working on prion diseases. Among the deliverables are 1) statistics on the number and type of phone calls handled on the toll free helpline; 2) copies of education materials developed by the awardee; and 3) summaries of the proceedings of the conference including the number of persons attending. Through this announcement, alternate sources are being offered the opportunity to demonstrate their capabilities to provide the services specifically identified above. To be considered qualified, sources must submit a capabilities statement which demonstrates in writing that they possess at least two years of task-related experience in maintaining a toll-free helpline 24 hours/7 days a week, producing informational booklets, educating healthcare workers and the public via a website, teleconferences, meetings and the development of educational material, and sponsoring a national conference as described above. Qualified organizations are encouraged to submit a capabilities statement which addresses the requirements and contains material in sufficient detail to allow the CDC to determine if the party can perform this requirement. Capabilities are to be received in the contracting office no later than fifteen (15) days from the date of this amended announcement. Submit written information to: Kimberly Groves, MS-1019, Reference: 0000HCRU-2004-08490, DHHS/PHS/CDC, 1095 Willowdale Road, Morgantown, WV 26505, or responses may be submitted electronically to Kimberly Groves at kpg0@cdc.gov. The intent of this synopsis is to determine whether alternative sources exist. Information received will be used solely for the purpose of determining whether to conduct a competitive procurement. A determination by the Government not to compete this proposed requirement based upon responses to this notice is solely within the discretion of the Government. All responsible sources may submit a response, which shall be considered by the Agency.
- Record
- SN00603457-W 20040617/040615211645 (fbodaily.com)
- Source
-
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